Sunday, April 27, 2014

Working in partnership in health and social care or children and young people's settings.

1. Understand partnership working.


1.1 - Identify the features of effective partnership working.

Partnership working has been a recurrent public policy for the last 40 years for health and social care; different solutions have been presented along the way, such as a single system by full integration. Current and previous attempts at partnership working have risen directly out underlying assumptions that underpin our current welfare system. 1940’s legislation set up the current welfare state that assumed it was easy to differentiate between those who were sick and had health needs, to those that were disabled and had social care needs. This underlying assumption has created very different organisations, with very different structures and ways of working, including all the subsequent complexities that partnership working entails. (Glasby, 2010 p.17-18)
Being able to look and analyse the system that created partnership working may perhaps attempt to explain where these complexities began within social work, what that means to the profession and to service users, carers and the community. 
Developments in partnership working began in 1997, which was the year of Tony Blair’s New Labour landslide victory, with this came promises of reform across many different sectors such as education and employment. Within their manifesto were promises of rebuilding the NHS by increased spending on patient care and the seventh manifesto included a promise of building stronger communities, laying the foundations for a better welfare state and community care.
The delivery of services was to be focussed on partnership working not only between health and social care but also between service users themselves. This is exemplified in the white paper “Shifting the Balance of Power within the NHS (DoH 2001). This set out the implementation of strategy for the NHS plan but seemed to stress the dominant role of health rather than social care. However the emphasis was on joint working across a wider range of partners. Local strategic partnerships where designed to align plans for service development with the introduction of Health Improvement Modernisation Plans (HiMP). (Macdonald, 2006. P142) Each health authority is obliged to produce a HiMP to set the strategic framework for improving health, this modernisation also needed applying to how services were planned with key partners such as local authorities and voluntary organisations. 

1.2 - Explain the importance of partnership working with:

Ø  Colleagues
Partnership working has been shown to have benefits for staff; it has been found to give more clarity regarding roles and responsibilities and is also linked with lower levels of stress.
Staff working in partnership with a service user’s family will become more aware of families' individual needs, and know more about an elderly person's home context, thus enabling them to be aware of how the care home is different or similar to their own home and understand the elderly person’s behaviour with this in mind.

Ø  Other professionals
Effective partnership amongst care home workers and other professions such as health care workers relies on a recognition that all parties care about the same goal: that of promoting the health of the service user.
Each might take a ‘different path’ to achieving this goal, but this should be the common agenda.   Partnership could be enhanced by ensuring the service user was placed at the centre of everything, and that a proactive, ‘whole person’ approach was taken to care.   Partnership working is improved when professionals in the care home and health and social care sectors link together to anticipate problems and take a more preventative approach to health.
Linked to this recognition of common goals, effective partnership requires a clear understanding of, and respect for, each other’s roles in the process of care.   Assumptions around a lack of knowledge or different perceptions of the status of each sector may hinder this.

Ø  Others
Service Users The main impacts on service users is their improved access to services, through speedier and more appropriate referral, and a greater focus on prevention and early intervention. Partnership working can make improvements to the lives of service users through more focused support.
Families Partnership working with families of service users ensures families feel like equal partners within the process.
Partnership working builds a positive and non-judgmental relationship with the family concerned, by ensuring that multi-agency service provision is delivered in a timely and coordinated manner where all involved in the process are empowered to deliver their role optimally. Information sharing with family members ensures they have more knowledge and as such more understanding of service provision. By drawing services together in a coherent partnership we can ensure that the family needs to tell its ‘story' only once. Partnership working may empower families to seek out help and advice if they need it. Partnership working is also about engaging whole families, making sure everyone's opinions are heard and listened to. With a 'whole family' approach, we can ensure we're meeting everyone's needs and that's what makes the lasting difference.

1.3 - Analyse how partnership working delivers better outcomes.

Partnership working across health and social care is seen as being at the heart of providing seamless care and avoiding fragmentation There has also been a major shift in focus towards the outcomes that services deliver, addressed most recently, for England, in the New Outcomes Framework for Performance Assessment of Adult Social Care (CSCI, 2006).
Outcomes for Professionals:
þ  Professionals involved in partnership working report that they enjoy it and that they find it rewarding and stimulating.
þ  For those involved in developing new working approaches, there is the element of job satisfaction from the creativity and autonomy from the experience.
þ  Two studies that explored partnership working within the context of health and social care, reported gains in confidence among professionals, improved relationships with other professionals and improved relationships with families.

ý  There may be a number of negative impacts on professional identities that could arise from partnership working between health and social care agencies. The expansion of new roles within a team could lead to confusion regarding roles amongst team members and to uncertainty about roles, including some individual questioning of what their role might be within new contexts. Role demarcation as a challenge of partnership working can occasionally be a problem.

Outcomes for service users:
þ  The improvement of services. In a study of good practice in multi-agency working it was found that services were improved for those clients who were accessing more than one service or organisation – especially those using jointly provided services or those within multi-agency case-review meetings.
þ  Better access to services and services having a more preventative/early intervention focus. One of the impacts for service users is gaining access to services not available previously and easier/quicker access to services. In a study of the impact of multi-agency working service users with complex health care needs found that the ‘key worker’ function in the multi-agency activity was particularly instrumental in bringing about improved access to services.
þ  Reduce stigma attached to accessing services.
þ  A positive impact on professional identities, which a study found arose from multi-agency work between health and social care was that individuals felt more accountable. For example, if they said in the context of a multi-agency team meeting that they would action a particular item, then they made sure that they did.

Example of a positive outcome as a result of partnership working:
An assessment of a lady who was referred to the home led to an understanding that her husband- Mr B was working full time and also caring for her with a complex long term condition. Following a number of discussions with the referring social worker, Mr and Mrs B and Mr and Mrs B’s family, it was decided that Mr B could in fact continue to look after Mrs B in her own home and that we as a care home could assist him in supporting her until if/when she needed to come in to the home. Mr B agreed to complete a carers’ assessment with the support of the social services. Mr B’s main concern was balancing his work and caring roles.

Through partnership working, together we identified the following options and support:
F  Mr B attending a training course, with other carers, aimed at supporting him to look at ways of dealing with the emotional and practical impact of caring for his wife.
F  We carried out a thorough assessment of Mrs B’s needs, with Mr B, their social worker, and the wider family. This resulted in Mrs B being offered a place at the home for respite care during the day when Mr B was at work.
F  Talking to his wider family about being involved in supporting his wife.

Ten months on from the original contact the assessment and support has resulted in:
F  Mr B being able to continue to work knowing that his wife is supported and happy at the home. As a result his work is again more satisfying and less stressful.
F  Mrs B had access to nutritional meals and social activities which extended her networks of support but also gave her new friends and interests. It was also preparing her for when/if she needed to come to the home for a longer stay or to move in permanently, as she (and Mr B and the rest of the family) would be familiar with the way the home worked and know the carers and other residents.
F  Mr and Mrs B’s family were made aware of the limitations of the home and what care requirements would need to be met by the family, which previously they had not been aware of, this allowed Mr B a wider circle of support and gave more contacts for Mrs B if she struggled in the day without him. This in turn increased the sense of security for both Mr B and Mrs B
F  Mr B having continued contact with the carers at the home who were able to offer peer support and social contact, which because of his work/caring role balance he had previously been without.

Social Services, the care home manager, the family and importantly Mr and Mrs B all understood who was responsible for which elements of Mrs B’s care. They all contributed to the review of this set up and provided feedback on any issues which may have affected o(r may go on to affect) the smooth functioning of this partnership arrangement.

1.4 - Explain how to overcome barriers to partnership working.

A barrier to partnership working may be the need for more mutual respect between the agencies involved in a service user’s care. For instance Health professionals are sometimes seen as patronising by pointing out the obvious in terms of caring for older people – but then again, some care homes need basic prompting on care that is being provided.
There may be a concern about the level recognition of the role care homes play in managing and identifying subtle changes in older people’s conditions.   There may be a power dynamic which means that health professionals working in the NHS feel more powerful, more professional, and of a higher status than care home staff, which impacts on equal partnership working.
Ø  There needs to be an emphasis on the building of good quality relationships, based on trust between agencies and a greater equality in relationships.
Ø  Fundamental to improving working relationships, is the idea that there needs to be a greater blurring of boundaries to promote ‘joined-up’ working.
Ø  ‘Joined-up’ working would also be enhanced if the paper work involved was made more common and if communication systems (such as IT) were more compatible and equitable.
Ø  Sharing education, training and workforce development could also improve matters, as could the existence of joint performance monitoring and agreed outcome measures.
Ø  Effective communication between agencies is essential to good partnership working.   Some staff could feel very isolated and this should be reduced through the creation of support networks and by reaching out to other partner groups.
Ø  Interaction needs to be on-going, and different agencies need to be mindful of the need to reduce jargon to promote clarity of understanding.
Ø  Inclusion of the views of patients and carers is also important to the communication process, as a means of helping staff to look at things in new ways and to bring diversity and creativity to the process.
Ø  Carers may benefit from building up relationships with named individuals in organisation.

‘It’s who you know!’   Promoting personal contacts and relationships should result in better access to services, better sharing of information and as a means of reducing feelings of isolation and of being overwhelmed by issues
A priority for me as a team leader would be to facilitate more effective partnerships by addressing negative attitudes: both those of individuals and the separate partner organisations, and those within society in general.
Ø  Individuals need to be more prepared to ask for help and be committed to sharing information and investment.
Ø  Organisations and separate staff groups need to work towards a better pro-active approach to care and to develop a better understanding of role strengths and what is important for different partners.
Ø   Respect and understanding of roles needs to be demonstrated by appropriate use of language and inclusion:
Poor attitudes within society in general need to be changed in relation to the care sector, in order to promote better working and care provision.   Poor public perception and low wage scales for staff in care homes might result in a reluctance to choose the care sector as a career, for instance.   Primarily though, work to address poor attitudes to the care sector is needed to start with addressing attitudes within the sector itself.

Establishing joint training across health and social care is crucial means of promoting effective partnership working.   Better training of care home staff could also reduce demand on health care professionals and improve social care assessment and communication with health professionals.
Ø  The provision of opportunity for individual cross-sector learning – such as through having of student nurse or Allied Health Professional placements in care homes, or by encouraging the shadowing of roles across partner organisations
Ø  The establishment of shared learning networks, where partners could both disseminate good practice and jointly reflect on error reporting or audit
Ø  The provision of specific training for targeted staff by specialist workers – such as where District Nurses train care home staff in catheter care, for example : Partnership working is likely to be improved through better education of individuals working in the field; especially if this focuses on improving their understanding of other services and roles through opportunity to work in other areas or settings.   Particular attention needs to be given to the following areas:
F  Creation of more placement opportunities in care homes for student nurses, OT’s, physiotherapists and others (including GNVQ students from colleges, perhaps).
F  Creation of more shadowing opportunities right across health and social care.
F  Creation of more opportunities for specialists to come into care homes to provide guidance and education (for example: hospital discharge staff to visit an older person in a care home and update staff re managing their health needs).








2. Be able to establish and maintain working relationships with Colleagues.


2.1 - Explain own role and responsibilities in working with colleagues.

Successful joint working between health and social care staff is a vital component of improving the lives of vulnerable adults and children. Objectives of joint working include:
F  Streamlining assessments and preventing families from having to give the same information to multiple professionals.
F  Improving information sharing between professionals.
F  Improving the efficiency of the care system as a whole.
F  Co-ordinating the provision of care.
F  Improving the planning and commissioning of care so that health and social care services complement rather than disrupt each other.

It is important in my role to maintain a professional approach whilst upholding my workplace principles and values. it would be up to me to set tasks and clear objectives for my colleagues which should be SMART, specific, measurable, achievable, realistic and there should be timescales. Wherever possible I should involve colleagues in the decision making process when setting objectives. By listening and accepting colleague’s ideas, suggestions and opinions I will make sure that they feel important and acknowledged in the work that they are doing. This will make it more likely they take ownership of the objectives and feel more valued and work more actively to achieve the desired outcomes. It is important that I support colleagues and give them feedback and suggestions on how performance can be improved. It is also important to acknowledge the different needs of each individual team member. It is important, as manager, to know and recognise my own limitations and to share any concerns I have with colleagues. By holding regular team meetings this will provide an opportunity to share relevant information, make decisions as a team and provide support and help for team members.

There are useful communication tools which ensure that colleagues are kept informed about progress and objectives. As Manager I will be responsible for updating policies and procedures within the workplace therefore it is essential that you keep up to date with your knowledge in order to pass on relevant information to your colleagues.
Ø  Theories
The Forming – Storming – Norming – Performing model of” group development” was first proposed by Bruce Tuckman in 1965, who maintained that these phases are all necessary and inevitable in order for the team to grow, to face up to challenges, to tackle problems, to find solutions, to plan work, and to deliver results. This model has become the basis for subsequent models.

Ø  Forming
In the first stages of team building, the” forming” of the team takes place. The individual's behaviour is driven by a desire to be accepted by the others, and avoid controversy or conflict. Serious issues and feelings are avoided, and people focus on being busy with routines, such as team organization, who does what, when to meet, etc. But individuals are also gathering information and impressions - about each other, and about the scope of the task and how to approach it. This is a comfortable stage to be in, but the avoidance of conflict and threat means that not much actually gets done.
The forming stage of any team is important because, in this stage, the members of the team get to know one another, exchange some personal information, and make new friends. This is also a good opportunity to see how each member of the team works as an individual and how they respond to pressure.

Ø  Storming
Every group will next enter the “storming” stage in which different ideas compete for consideration. The team addresses issues such as what problems they are really supposed to solve, how they will function independently and together and what leadership model they will accept. Team members open up to each other and confront each other's ideas and perspectives. In some cases “storming” can be resolved quickly. In others, the team never leaves this stage. The maturity of some team members usually determines whether the team will ever move out of this stage. Some team members will focus on minutiae to evade real issues.

Ø  Norming
The team manages to have one goal and come to a mutual plan for the team at this stage. Some may have to give up their own ideas and agree with others in order to make the team function. In this stage, all team members take the responsibility and have the ambition to work for the success of the team's goals.

Ø  Performing
It is possible for some teams to reach the “performing stage”. These high-performing teams are able to function as a unit as they find ways to get the job done smoothly and effectively without inappropriate conflict or the need for external supervision. By this time, they are motivated and knowledgeable. The team members are now competent, autonomous and able to handle the decision-making process without supervision.

2.2 - Develop and agree common objectives when working with colleagues.


It is vitally important to be clear about what’s trying to be achieved and what colleagues are responsible for. Everyone needs to know what is expected of them and it needs to be possible to assess how well I am doing in working towards achieving my aims and objectives. In order to develop and agree common objectives when working with colleagues I may need to negotiate and make compromises in some areas. All planning, goal setting and targets must make sure they encompass the needs of the service user and they are at the centre of my planning.

By promoting relationships that respect colleague’s ideas and opinions, I am showing colleagues that I value their opinions. This can be achieved by having team meetings and giving the team members the chance to share ideas and give feedback on team working and to develop and agree objectives. This also ensures good relationships between team members and that colleagues are aware of the goals of the team and where they fit into those aims. Colleagues will work better in partnership when they are aware of their goals and share common objectives which they are all working towards together.



2.3 - Evaluate own working relationship with colleagues.


Team skills management is a recognised method (created by Belbin) to establish managerial style. Using a self-grading system an individual can establish a personal inventory of their skills, strengths and weaknesses. It is also possible to evaluate my strengths and weaknesses as an open and participatory leader by encouraging and putting procedures in place to receive feedback on my own performance as a leader from the team members and by providing opportunities for all those involved in the working relationship to express their views.

As team leader I can also complete self-appraisal. Self-appraisal is an important part of the Performance appraisal process where the employee themself gives the feedback or views and points regarding their performance. Usually this is done with the help of a self-appraisal form where the employee rates themself on various parameters, tells about their training needs, if any, talks about their accomplishments, strengths, weaknesses, problems faced etc. My effectiveness as leader can be assessed by measuring success against set targets and by reviewing objectives and checking progress.

2.4 - Deal constructively with any conflict that may arise with colleagues.


All managers will at some time, have to deal with conflict. The way I handle discord is a determining factor to success. Initially, I must communicate to gain a clear understanding of what is actually causing the conflict. Conflicts may have many different causes, for example, colleagues may have different work methods, with the same goals but different approaches to achieving them. A clash of personalities, stress and differing views can often all be sources of conflict. Conflict is not necessarily a bad thing providing that it is dealt with constructively. When dealing with a group of people conflict and dilemmas are inevitable. If a conflict or dilemma is dealt with successfully, not only will the problem be resolved but an increased understanding of each other and a situation may follow. Communication is a vital tool in dealing with conflict. In order to deal with the conflict the following steps can help:
ü  Identify the issue
ü  Propose several possible solutions
ü  Evaluate the alternatives
ü  Determine the best solution
ü  Implement
ü  Continual evaluation of the solution
Strategies to minimise conflicts should be embraced, such as respect for others, communicating your expectations, encouraging team work and empowering people. This is all vital when leading teams because it is inevitable that conflicts and dilemmas within the team or concerning the team will arise. It is important that these are solved effectively by using the most appropriate style for the situation to ensure that the team continues to work effectively and hopefully some lessons and development can come from the situation. A good way of preventing conflicts from erupting is by creating an atmosphere in which collaboration is valued and interpersonal differences are accepted.









3. Be able to establish and maintain working relationships with other professionals.


3.1 - Explain own role and responsibilities in working with other professionals.


In order to provide a person centred service for individuals. I will need to work in partnership with professionals from other agencies and organisations. For this to work successfully I need to be clear about my own role, responsibilities and limitations and also aware of the roles of other professionals; I need to be confident about my own standards and targets and respectful of those that apply to other services, actively seeking and respecting the knowledge and input others can make to delivering best outcomes for the service user. It is an important part of my role and responsibilities within partnership working to share my own skills and knowledge and also to take advantage of any opportunities to observe the practice of other professionals.   By making effective use of opportunities to draw upon their skills and expertise it will enable me to extend my own knowledge and understanding.

In order to work effectively with other professionals, I will need to interact with them in a manner likely to promote trust and confidence in the relationship. This will include the sharing of information, which must be complete and accurate, in order to assist them in their role. I should make sure that I work within the boundaries of my knowledge and responsibility and keep accurate records which are stored correctly in line with the data protection act and my organisations policies and procedures.

I will be able to contribute to planning and implementation of joint actions consistent with my role and responsibilities. I need to have the confidence to challenge issues where appropriate and be able to state my own judgements in an assertive manner. It is also my role and responsibility to upholding my work sectors principles and values whilst maintaining a professional approach.

To summarise I will need:
F  Effective communication skills – by listening and making sure I am listened to
F  Use plain language during communication not professional jargon
F  Provide timely, appropriate, succinct information to enable other   professionals to deliver their support to the individual
F  Record, summarise, share and feedback information.
F  Respect the contribution of others working with individuals
F  Share experience through formal and informal exchanges

3.2 - Develop procedures for effective working relationships with other professionals.


It is important to develop procedures for an effective working relationship with other professionals because as well as making my workplace more enjoyable to work in, the service users will benefit from a better service with better outcomes, when everyone works as a team. It will also help my organisation to maintain a professional image. In an effective relationship parties listen to and understand others’ positions and feelings. The simplest way to understand what is important to another person or to a group is to ask, then and listen to the answer. It is important to clearly define my own role and responsibilities and those of other professionals and agree common objectives, goals, targets and ways of working. I will need to exchange complete, accurate and up-to-date information with other professionals whilst respecting requirements for confidentiality. In order to ensure an effective working relationship this must be done in line with good practice, values and ethical requirements. Any commitments I have made should be fulfilled or advise people immediately if I am unable to do so. Any disagreements and complaints should be dealt with promptly, positively and in line with organisational procedures and professional guidelines and also in the best interests of the service users.

To summarise:
F  Multi-disciplinary working requires the establishment of shared protocols and   formalised procedures to help ensure consistent standards of care.
F  Developing an effective multi-disciplinary team requires the setting of clear objectives through the identification of need and the planning, purchasing and   financing of services
F  Effective planning
F  Consideration of how services are to be financed
F  Management of a multi-disciplinary team requires procedures to address the professional, training and developmental needs of individual team members.

3.3 - Agree common objectives when working with other professionals within the boundaries of own role and responsibilities.


I will need to build relationships with other professionals and be able to work effectively with them, both inside and outside of healthcare in order to deliver a high standard of care and to make sure of the service users safety. It is important to ensure that the service user remains the centre of the process. It is important to respect the skills and contributions of other professionals, and developing effective communication with other members of the team and with the service user. Common SMART objectives should be established in the beginning and be agreed by all involved in the partnership.

Ø  Specific. This means that they tell you exactly what to do.
Ø  Measurable. This means that there should be a way of telling when you have reached the goal.
Ø  Achievable. There is no point setting a goal that you cannot possibly achieve, as this will demotivate you. Be honest about your priorities in the coming weeks and do not try to do too much.
Ø  Relevant. The goal should help you to move towards your final goal, e.g. to achieve your key skills.
Ø  Timed. A deadline should be set   for achieving your goal

I must remain aware of the boundaries of my own role and responsibilities as detailed in my job description. My job description is a communication tool which will advise me where my job role ends and another person’s job role begins. Any agreements, objectives and plans should be recorded in line with my company’s policies and procedures and should detail my role and responsibilities and the role and responsibilities of others, so that everyone is clear on how they are involved, and the objectives, with agreed agendas on how they will be reached.

So what are objectives? Objectives are the outcomes I expect to achieve from my aims or goals. Objectives act as a reference to guide me through the planning process - they influence all the decisions I make. I will hold meetings with all those involved in planning and implementing the service user’s plan of care in order to discuss objectives and to agree an agenda of how these objectives will be achieved. A meeting is not simply a time to get together and discuss what is going on. The main purpose of most meetings is to reach agreement on how to progress in the future. It is important that decisions made in meetings are clearly recorded, so that everyone knows what will be done, who will do it and when it will be done. Written records of meetings are usually known as meeting minutes. They usually record who attended the meeting, what was discussed and what was decided.
I must establish the principle of transparency concerning the sharing of information. What types of information would be covered by this? How and by whom should information be made available by each of the party(ies)? What are the consequences of failing to make agreed information available to the other party(ies)? What are the agreed expectations concerning the sharing of information? What information can each organisation withhold from the other? What information may be used externally by each party? Me and my partners should agree an agenda at the start so that everyone is clear about the objectives, their personal responsibilities and the responsibilities of others in the partnership.

3.4 - Evaluate procedures for working with other professionals.


In order to evaluate procedures used for partnership working there has to be a system in place to monitor and review progress. This is where the importance of agreeing the outcomes and timescale at the beginning of the partnership are important. The evaluation should be carried out by monitoring, reviewing and measuring the progress made against set outcomes. Regular progress reports should be produced. If procedures are working well with all the professionals involved this will result in positive outcomes e.g. coordinated service provision, professional approach, clear roles and responsibilities, organised communication, avoidance of duplication, preventing mistakes, efficient use of resources. If the procedures are not working it could result in negative outcomes such as professional rivalry, miscommunication, time wasting and mismanagement of funding.

The impact of my organisations working with other professionals, on the service users, should be taken into account and their views and opinions should be listened to as part of the evaluation process. This part of the evaluation could be conducted by completion of a questionnaire by service users, if possible. Positive outcomes for the individual could include improved services, empowerment, autonomy, informed decision making whilst negative outcomes could consists of miscommunication, information overload, confusion, frustration, duplication of service provision and disempowerment.

3.5 - Deal constructively with any conflict that may arise with other professionals.


It is important for all members of a partnership to be aware that conflict is inevitable. Different philosophies, principles, priorities and codes of practice can have a positive effect on team working by providing a more thorough and well-rounded look at how the team should be working to achieve the best possible outcomes for service users. However if the different philosophies, principle, priorities and codes of practice are in conflict with one another it is possible that this will have a negative effect because there will be inconsistencies and this can result in confusion within the workplace. The team’s ability to meet all the needs of all agencies and partners can be difficult if they conflict. Conflict is not necessarily a bad thing providing that it is dealt with constructively. In social care work the team members have to deal with each other, multi organisational disciplines such as GP’s, family and friends of service users and the service users themselves. When dealing with this many people and their views conflict and dilemmas are not only inevitable but often daily occurrences. If a conflict or dilemma is dealt with successfully, not only will the problem be resolved but an increased understanding of each other and a situation may follow. There are several styles that can be adopted when dealing with conflicts or dilemmas;

Ø  Competitive
A competitive style is usually adopted by the person involved in the conflict that has more power. They know what they want and they are not willing to budge from their position. They want to win at the other person’s expense. This can be useful in situations of emergencies when the problem needs a quick resolution.
Ø  Collaborative
A person adopting this style is concerned with meeting the needs of all the people involved. In care this can be useful when balancing the needs of service users and the organisational requirements. The aim of this style is to achieve a win: win scenario following the conflict or dilemma because everyone has helped to establish the solution together. A person adopting this style is also concerned with everyone getting something that they want but possibly giving up something else, reaching a compromise and reaching a win: win situation.

Ø  Accommodating
A person adopting this style is concerned with meeting the needs of others at the expense of their own. This person is not assertive and highly cooperative. This style is appropriate when a peaceful outcome is more important than winning.

Ø  Avoiding
A person adopting this style is concerned with evading conflict and the dilemma entirely. This style is not very effective at resolving conflicts or dilemmas but is appropriate if there is no chance of winning for either side.

A good way to resolve conflicts and dilemmas is to follow some rules. It is based on both parties working together to find a mutually acceptable solution. This is however based on the assumption that there is sufficient common ground to make it worthwhile. I should
                                                               
ü  Make sure that good relationships are my first priority
ü  Identify the issues
ü  Be open and honest
ü  Keep people and problems separate
ü  Pay attention to the interests that are being presented by listening
ü  Listen effectively first and talk second
ü  Non-judgemental approach
ü  Set out the facts
ü  Explore the options together

Another option is mediation, which involves including a third party into the situation. The mediator works with both parties passing on information and attempting to get the negotiations moving rather than coming to a halt. The mediator should be neutral and should not pass on their own opinions. They should build trust with both sides in order to be effective.

This is all vital when leading teams because it is inevitable that conflicts and dilemmas within the team or concerning the team will arise. It is important that these are solved effectively by using the most appropriate style for the situation to ensure that the team continues to work effectively and hopefully some lessons and development can come from the situation. A good way of preventing conflicts from erupting is by creating an atmosphere in which collaboration is valued and interpersonal differences are accepted but are not allowed to jeopardise cooperation.





4. Be able to work in partnership with others. 


4.1 - Analyse the importance of working in partnership with others.


It is essential that I work in partnership with all of the people surrounding the individuals I am supporting in order to ensure a person centred approach to their care and the best possible support and care is provided. Before discussing inter-agency co-operation and participation, it is important to consider how I can promote the participation and empowerment of the service user. No matter how effective the inter-agency collaboration and information sharing is, if the service user does not feel part of the process the chances of successful outcomes will be significantly reduced. I will need to work in partnership with carers, families, advocates and other people who are sometimes called “significant others”.   In order to work well in partnership, there has to be good communication and I will need to have good communication skills.   Others people may be able to provide useful information to support me in my work. They will have knowledge of the needs, wishes and preferences of the individual.   Also I may be able to provide useful information to support them in being part of the individual’s lives.

This is good partnership working. An example might be if there are communication difficulties.   A carer or family member can share information with you about how you can best communicate with an individual.   The importance of this is it enables the individual to be listened to and supported in ways that they desire and choose.

Information should be collated from all the available sources to build a picture of the individual life.   In doing so this will promote the individuals well-being and provide a holistic approach to their care needs.

4.2 - Develop procedures for effective working relationships with others.


The service users’ needs, preferences wishes and health care requirements need to remain at the centre of any procedures developed for an effective working relationship with them, their family or carers. They should be fully informed and involved in any decisions regarding their care and the delivery of any support they may need.   At the start of an individual’s care all those involved should discuss the care package, and establish a shared understanding. It will be necessary to set boundaries in various areas for example confidentiality, the recording and storage of information and the sharing of information with other agencies. Everyone involved should be aware of the complaints procedure in case of any future problems. Communication is an important area to discuss and regular contact and updates should be agreed in the beginning.
By developing and building good relationships with all concerned and by ensuring my colleagues are aware of procedures an effective working relationship will be established. I should provide staff with feedback and suggestions of areas requiring improvement.

4.3 - Agree common objectives when working with others within the boundaries of own role and responsibilities.


Agreeing common objectives with others within the boundaries of own role and responsibilities is done by maintaining a professional relationship and both having an input into the plan of care and what needs to be done to meet the care needs. It needs to be ensured that each others opinions and views are respected and listened to and that each individual specialising in each area has an input and shares their knowledge and the links they have access to.

4.4 - Evaluate procedures for working with others.


To evaluate procedures when working with others is to ensure the best method is being used and that the communication is reaching the other parties effectively and being understood. Ensure that all parties are happy with the procedures and ask for their input in any changes they feel they would like to input to make it more effective.

Outcomes for users of services:
Ø  positive outcomes : will result in improved services, empowerment, autonomy, informed decision making;
Ø  negative outcomes : will result in neglect, abuse, harm, anger, miscommunication, information overload, confusion, frustration, duplication of service provision, disempowerment

4.5 - Deal constructively with any conflict that may arise with others.


Conflicts are inevitable and it is possible to develop the skills required to deal with them in a constructive way in order to minimise the effects they can have. Good communication and even more importantly listening skills are the key to managing ethical dilemmas and conflicts for individuals. I should try to establish what has caused the conflict, be non-judgemental in my approach and establish a common ground to work from. Show empathy and try to understand their point of view and attempt to mediate a resolution by formulating points of agreement. Conflicts can be made worse or more frequent by someone’s illness or condition. Some conflicts may prove more difficult to deal with than others especially when it involves one person’s rights as opposed to another person’s rights.
I should ensure that all service users are aware of the complaints procedure wherever possible and have support from staff to file a complaint. In ensuring this it is promoting the service users rights choices and well-being and builds a trusting relationship between them, their family and the establishment I work for.


  

  

References


Ø  The learning, teaching and assessment of partnership work in social work education

Ø  Successful Partnership Working

Ø  Working Partnership


Ø  Diploma in Leadership for Health and Social Care Level 5 – By Nelson Thornes.

Wednesday, April 23, 2014

Promote access to health care for individuals with learning disabilities

1. Understand issues related to access to health care services for individuals with learning disabilities.


1.1  - Explain the rights based approach to accessing health care services.


In relation to health, a rights-based approach means integrating human rights norms and principles in the design, implementation, monitoring, and evaluation of health-related policies and programmes. These include human dignity, attention to the needs and rights of vulnerable groups, and an emphasis on ensuring that health systems are made accessible to all. The principle of equality and freedom from discrimination is central, including discrimination on the basis of sex and gender roles. Integrating human rights into development also means empowering poor people, ensuring their participation in decision-making processes which concern them and incorporating accountability mechanisms which they can access.

Ø  Some of the reasons why a rights-based approach to health and social care is considered to be best practice are that it:
ü  Supports health and social care staff in meeting their professional ethical obligations;
ü  Improves both the quality and effectiveness of health and social care, improves decision-making processes and enhances the health and well-being of all service users;
ü  Helps health and social care staff to better understand the range of societal and cultural factors that impact upon an individual’s health and well-being;
ü  Reduces complaints and litigation.

1.2  - Identify inequalities in access to health care services in different sections of the population.


The distribution of health is determined by a wide variety of individual, community, and national factors. There is a growing body of evidence documenting inequalities in both the distribution of health (i.e. health outcomes) and access to health care both internationally and in the UK. Access to health care is a supply side issue indicating the level of service which the health care system offers the individual.








Text Box: Determinants of health
 



Researchers have documented inequalities in the distribution of health by social class, gender, and ethnicity. Inequalities in health have been measured using many different outcomes including infant deaths, mortality rates, morbidity, disability, and life expectancy.
Ø  The Black Report
The Black Report, published in 1980 confirmed social class health inequities in overall humanity (and for most causes of death) and showed that health imbalances were widening. The report set out four possible methods to explain widening social economics health inequalities:
·         Social selection:
Health determines social position. Somewhat similar to Darwins natural selection, i.e. healthy people are more likely to get promoted while unhealthy people are more likely to lose their jobs.
·         Behaviour:
Individuals in the lower social classes indulge in comparatively more health damaging behaviour.
·         Material circumstances:
Poverty causes poor health

Ø  Whitehall Study of British Civil Servants
·         The ongoing Whitehall Study of British Civil Servants http://www.ucl.ac.uk/whitehallII/  is a cohort study following British civil servants over a long period of time. It collects detailed information on risk factors such as weight, cholesterol, smoking, and blood pressure. The study found inequalities in health and mortality between employment grades and found that risk factors could only explain one-third of the observed variation in health by employment grade.

Ø  The Acheson Report
·         The Acheson Report published in 1988 found that, ortality had decreased in the last 50 years but that inequalities in health remained, and in some instances health inequalities had widened. The report recommended.
1.       Evaluating all policies likely to affect health in terms of their impact on inequalities.
2.       Giving high priority to the health of families with children.
3.       The government should take steps to reduce income inequalities and improve living conditions in poor households.












1.3 - Analyse how different investigations, inquiries and reports have demonstrated the need for improved access and services for individuals with learning disabilities.


People with learning disabilities have poorer health than non-disabled Service users, differences in health status that are, to a significant extent, avoidable. These health inequalities start early in life, and result from the interaction between multiple processes.

Carrying out of annual health checks for people with learning disabilities in England has been constantly recommended over the past 5 years as one component of health policy responses to the poorer health of people with learning disabilities.
1.       Following a proper Investigation into the health inequalities experienced by people with learning disabilities, the Disability Rights Commission in 2006 recommended the introduction of annual health checks for people with learning disabilities in England and Wales as a ‘reasonable adjustment’ in primary health care services.
2.       Annual health checks for every adult on a local authority register were introduced as a Direct Enhanced Service (DES) in primary care services in Wales in 2006.
3.       The introduction of annual health checks for people with learning disabilities in England was also recommended by the 2008 Independent Inquiry into Access to Healthcare for People with Learning Disabilities. In September 2008 the NHS and the British Medical Association announced plans for a Direct Enhanced Service (DES) to deliver annual health checks in England.
4.       In February 2009 directions were published by the Department of Health that required PCTs to offer GP practices in their area the opportunity to provide health checks for people with learning disabilities as part of a DES scheme. The DES, originally agreed for two years (2008-9 and 2009-10), has since been extended for at least another year (2010-11).
5.       Since that time significant progress has been made in increasing access to annual health checks across Primary Care Trusts (PCTs) and Strategic Health Authorities (SHAs) in England.

1.4 - Describe the impact of legislation, policy or guidance underpinning the need for health care services to enable access to individuals with a learning disability.


Each of the four UK countries has its own policies on how the needs of people with learning disabilities should be met. These policies describe a holistic approach for supporting people with learning disabilities to reach their potential and take their place in the community.

The policies aim to improve quality of life and are based on broad themes:
ü  Citizenship
ü  Empowerment
ü  having choices and making decisions
ü  having the same opportunities as other people
ü  having the same rights as other people
ü  Social inclusion.

The UK policies on people with learning disabilities are:
Ø  England:
Department of Health (2009) Valuing people now: a new three year strategy for people with learning disabilities.
Ø  Northern Ireland:
Department of Health and Social Security (2005) Equal lives: review of policy and services for people with a learning disability in Northern Ireland.
Ø  Scotland:
Scottish Executive (2000) The same as you: a review of services for people with learning disability.
Ø  Wales:
Learning Disability Advisory Group (2001) Fulfilling the promises: report of the learning disability advisory group.

Each policy addresses health needs in various ways, but focus on similar issues, including:
·         Promoting collaborative working between general health services (primary and secondary care) and specialist learning disability services.
·         People with learning disabilities to access general health services with support from specialist services when needed.
·         General health care staff to receive adequate training on the needs of people with learning disabilities.
·         Offering people with learning disabilities an individualised health care plan.
·         In England and Northern Ireland people with learning disabilities should be offered a health action plan and should be facilitated to develop their plan and ensure it is implemented.
·         Ensuring that people with learning disabilities are offered regular health checks and are included in health screening programmes.

These policies have been specifically developed for people with learning disabilities, but it is vital to remember that all policies and laws are relevant to people with learning disabilities, including each of the National Service Frameworks.





1.5 - Analyse how legislation, policy or guidance on capacity and consent should be used with regards to individuals considering and receiving treatment.


In the past it was assumed that having learning disabilities meant people lacked the capacity to make decisions. However, it is now recognised that people with learning disabilities have as much right to make decisions for themselves as anyone else.

UK laws on consent to examination and treatment serve the population as a whole, which includes people with learning disabilities. The four countries of the UK have developed, or are in the process of developing, legislation regarding consent law. While these acts may differ in terminology and process all are based on similar principles and, with regard to consent to examination or treatment, have similar expectations of health care staff.

The underlying principles of consent to treatment is that no adult can make a decision on behalf of another adult (an individual over the age of 16 years), and that it must be assumed that a person has the capacity to make a decision unless proved otherwise. As health care professionals we may consider that there is an issue in regards of capacity if a person has a mental disorder. In England and Wales the Mental Capacity Act (2005) provides a list of what constitutes a mental disorder, of which learning disabilities is included. This does not mean that the person lacks capacity, just that you may need to assess the individual’s capacity to make a particular decision. Other reasons why you may want to assess capacity include:
Ø  The person has made several unwise decisions.
Ø  You believe the person is being coerced.
Ø  The person is suggestible and/or acquiesces.

When assessing capacity it is important to remember that adults with or without learning disabilities can refuse examination or treatment, even if it is detrimental to their health, as long as they have the capacity to do so.

Before you can conclude that a person has or does not have capacity, you must ensure that the individual has been given sufficient support and information to help them make the decision. People with learning disabilities might have difficulty understanding information, and health care professionals should take all the necessary steps needed to support them to make decisions.

According to the British Medical Association and The Law Society (2004), in regards to assessing health related decisions the person being assessed needs to:
Ø  Understand in simple language what the medical treatment is, its nature and purpose, and why it is being proposed.
Ø  Understand its principal benefits, risks and alternatives.
Ø  Understand in broad terms what will be the consequences of not receiving the proposed treatment.

v  Other relevant policies
All policies and laws that apply to the general population apply to people with learning disabilities. Policies that might be particularly relevant to people with learning disabilities include:
ü  Carers and Disabled Children’s Act (2000)
ü  Disability Discrimination Act (1995)
ü  Human Rights Act (1998)
ü  Mental Health Act (1983)
ü  Mental Health (Care and Treatment) (Scotland) Act 2003

2. Understand the health care needs that may affect individuals with learning disabilities.


2.1 - Analyse trends of health care needs among individuals with learning disabilities.


Patterns of health service provision for people with learning disabilities are shifting. The residual hospital provision is mainly for specialist psychiatric assessment and treatment and also for some continuing care of people with severe and complex health problems. ‘Social care’ is no longer the responsibility of health services and the emphasis is much less on the disability and much more on support to the individual to build on strengths and respond to needs. There is a risk that this change of emphasis could lead to neglect of health care needs, and there has been a recent resurgence of interest and concern in this area (Lindsey, 1998). The difficulty in separating health from social care, particularly for people with long-term and complex needs, has led to an increasing emphasis on partnerships between organisations. Also, there has been an increasing awareness that the problems of institutionalisation and poor-quality care can arise in any care setting and that organisations that commission, provide and monitor services must work together to ensure that service delivery is optimal in terms of quality and effectiveness.

Most causes of learning disabilities occur before, during or soon after birth, but become apparent during the developmental period which extends from early childhood up to when an individual reaches the age of 18.

Some people experience brain damage in adult life, following an accident or through the effects of disease for example, which can result in a significant impairment of intelligence and social functioning. However, these individuals are not considered to have learning disabilities since their disabilities were acquired after their brain developed and are likely to use acquired brain injury services.

The term ‘learning disabilities’ replaced ‘mental handicap’ in the early 1990s and is used throughout the UK, although other terms, such as ‘intellectual disabilities’, are increasingly being used internationally. Some people with learning disabilities prefer to use the term ‘learning difficulties’, but this can lead to confusion since it is also used in some educational settings to describe specific conditions such as dyslexia.

People with learning disabilities live in a wide range of settings, but the majority live in the family home. People with milder learning disabilities might live by themselves or semi-independently, with a few hours of support each day. People who need a greater level of support, and do not live in the family home, might live in supported housing which is generally managed by private or voluntary organisations, although some are managed by health and social services.

Some people who present with severely challenging or offending behaviour, and/or have severe and enduring mental health problems as well as learning disabilities, might live in more specialist services which provide assessment and treatment. People with learning disabilities who have committed offences might be given a custodial sentence and, therefore, live in prison.

The health of people with learning disabilities has steadily improved over the last 30 years. However, they still have higher levels of health needs than their non-learning-disabled peers. When people with learning disabilities access primary and secondary services staff might experience difficulty in meeting their needs.

Although people with learning disabilities live longer than they did decades ago they still have higher mortality rates than people without learning disabilities. People with more severe learning disabilities, and people with Down’s syndrome, have the shortest life expectancy of the learning disability population. The highest causes of death for people with learning disabilities are respiratory disease followed by cardiovascular disease; cardiovascular disease tends to be congenital rather than ischaemic.

People with learning disabilities have the same health needs as everyone else, but their risk of developing certain conditions can differ. For example, people with learning disabilities are less likely to suffer some cancers, including lung cancer, than people without learning disabilities.

2.2 - Explain systematic approaches that may support better health and health care for individuals with a learning disability.

























Identification of evidence on access to healthcare services for people with learning disabilities is vital as part of an ongoing process of appropriate and effective service development. It is important that effort focuses on identifying and implementing innovations effective in overcoming these barriers.
Barriers related to identification of need and communication difficulties run throughout the model of access adopted for this study. People with learning disabilities and their carers require support in identifying need and arranging timely health consultations. Evidence shows that health check programmes are successful in identifying health problems among people with learning disabilities, but there is a lack of evidence on whether, and under what conditions, health checks can be effective as part of routine, mainstream health services. It is vital that success in identifying need is complemented by evidence that patients with learning disabilities subsequently obtain and use appropriate health services.

NHS policies aim to provide equitable health services to the whole population of England implying that initiatives, such as the National Service Frameworks (e.g. for cancer or mental health), should routinely include people with learning disabilities. Policy for people with learning disabilities recognises that for them to make full use of mainstream health services some support or accommodation will be necessary. ‘Having’ and ‘gaining’ access not only require that the full range of health services is available to people with exceptional needs, but that they are responsive to them. Changes in mainstream healthcare provision, such as adoption of person-centred practices, can address the needs of this group. However, this will only be achieved if the mainstream workforce is experienced and confident in caring for these patients.

Recent governmental initiatives outlined in the NHS Plan6 aim to improve patient involvement within health services. However it is not clear how developing initiatives such as the Expert Patient Programme, Patient and Public Involvement Forums, and Choice and Responsiveness consultations aim to include people with learning disabilities and their advocates as participants. These patients are amongst the most challenging to design services for and deliver services to. Their participation in initiatives of this type can prompt service improvements that will benefit people with a wide range of disabilities. Inclusion requires proactive and supportive approaches to ensure the views and experiences of people with learning disabilities are heard and their health needs met.

2.3 - Research the difficulties in diagnosing some health conditions in individuals with a learning disability.


Learning disabilities (LD) vary from person to person. One person with learning disabilities may not have the same kind of learning problems as another person with learning disabilities. One person may have trouble with reading and writing. Another person with learning disabilities may have problems with understanding math. Still another person may have trouble in each of these areas, as well as with understanding what people are saying.

Researchers think that learning disabilities are caused by differences in how a person's brain works and how it processes information. Children with learning disabilities are not "dumb" or "lazy." In fact, they usually have average or above average intelligence. Their brains just process information differently.

Up to 30% of people with learning disabilities also have physical disabilities, most often owing to cerebral palsy, and they need input from a range of specialist services. A large number of serious health problems are secondary to these physical disabilities (e.g. gastro-oesophageal reflux, aspiration pneumonias, risk of choking, joint pains and muscle spasms). The chronic discomfort caused by such problems may present as a behavioural problem and this can lead to misdiagnosis. Pain management is particularly important for people who cannot easily communicate their discomfort.

Ø  Epilepsy
Epilepsy is difficult to diagnose. This is because there is no one test that can say that someone has epilepsy. Diagnosing epilepsy in a person with learning disabilities can be even more difficult. This is for several reasons. For example, some people with learning disabilities have repeated behaviours, or movement disorders, which can be mistaken for seizures.

They might find it hard to let others know what has happened to them, or how they feel. An epilepsy specialist is the best person to decide which symptoms are epilepsy, and which are not. This is important to make sure the person gets the best treatment for their condition.

Ø  personality disorders
Though contentious, the diagnosis of personality disorders in persons with learning disability is clinically relevant because it affects many aspects of management. The variation in the co-occurrence of personality disorder in learning disability, with prevalence ranging from less than 1% to 91% in a community setting and 22% to 92% in hospital settings, is very great and too large to be explained by real differences.

The diagnosis of personality disorders in learning disability is complex and difficult, particularly in those with severe disability. Developing consensus diagnostic criteria, specific for various developmental levels, is one way forward. Such criteria may need to include objective proxy measures such as behavioural observations and informant accounts.

·         Problems in diagnosis
o   In those with average ability, lasting personality characteristics develop by adolescence. However, the developmental phase for personality characteristics among people with learning disability should be longer (Royal College of Psychiatrists, 2001).

o   Communication problems, physical, sensory and behavioural disorders associated with learning disability affect the ability to diagnose a personality disorder (Khan et al, 1997). The diagnosis of personality disorders often requires subjective information about thoughts and emotions, difficult to elicit in those with severe degrees of learning disability. Consequently, a particular pattern of behaviour diagnosed as ‘personality disorder’ in those with mild or moderate learning disability may be perceived as ‘ behavioural disorder’ in those with severe or profound disability.

o   The criteria for several personality disorders assume a level of cognitive ability which may be absent in those with learning disability. Dissocial (Goldberg et al, 1995) and paranoid personality disorders are examples. Difficulties in establishing concepts such as ‘preoccupation with unsubstantiated, conspiratorial explanations of events either immediate to the patient or in the world at large’ in a group with significant cognitive limitations are self-evident.

o   People with learning disability often display behaviours that overlap with features of some personality disorders.

3. Understand good practice in supporting people with a learning disability to access health care services.


3.1 - Analyse the effectiveness of existing communication systems and practices in supporting individuals to meet their health care needs.


Accessible information and good communication skills are crucial if people with learning disabilities are to have equal access to all health care services. People need to be able to access information they can understand and with which they can make decisions about their health. People with learning disabilities also need information on how to stay well.

Health and social care professionals have to develop effective communication skills in order to work with the diverse range of people who use and work within care services. The two contexts, or types of circumstances, in which communication and interaction occur are one-to-one and group contexts.

Ø  One-to-one communication
Bb One-to-one communication occurs when one person speaks with or writes to another individual. This happens when a care professional meets with a person who has health worries or personal concerns, such as during a doctor–patient appointment for example. Lots of one-to-one communication also occurs when care professionals meet with and talk to each other or with the partners, relatives or friends of people receiving care.

Communication in one-to-one situations is most effective when both parties are relaxed and are able to take turns at talking and listening. Effective communicators are good at:
·         Beginning the one-to-one interaction with a friendly, relaxed greeting.
·         Focusing on the goal or ‘business’ of the interaction.
·         Ending the interaction in a supportive, positive way.

Ø  Group communication follows slightly different ‘rules’ to communication in one-to-one situations. There is often more going on in a group, with a number of different people trying to speak, get their point across and their voice heard. Turn-taking can be more complicated; relationships and power issues between group members can also be more complex than in one-to-one contexts.

Ø  KEY Points of effective Verbal communication:
ü  Always speak to people with learning disabilities first, not the person supporting them. If they have difficulty answering questions then ask their supporter, but remember they may have different views from each other.
ü  To reduce anxiety and build confidence start by asking the person some questions you know they can answer.
ü  The average gap between a person listening and then responding during a conversation is three seconds. People with learning disabilities may need longer to think about what has been said and formulate a response.
ü  If you are giving the person new information, ensure you only use one ‘information-giving’ word or phrase (for example blood test) per sentence.
ü  If you are talking about existing information you can use up to four information-carrying words or phrases per sentence (for example, blood test, clinic, 9am, Monday). For people with more severe learning disabilities, only use two information-carrying words per sentence.
ü  It may be helpful (or essential for people with severe learning disabilities) to have photographs or objects to accompany each information-carrying word. Some people might use symbols. Talk to the person who supports them, or contact their speech and language therapist, so you are prepared.
ü  Try to avoid using negative words such as don’t, can’t, no and won’t. People with learning disabilities, and especially those with autism, can find them confusing and harder to understand. Use positive language, for example, ‘we will go out later’ rather than ‘we can't go out now’.
ü  If you ask a question that offers a choice of answers, be aware the person might choose the last one. You can check this by asking the question again later in a different way.

3.2 - Evaluate different ways of working in partnership to support individuals to meet their health care needs.


Health promotion services should work with service users, carers and the agencies involved to ensure that health promotion is accessible to people of all ages with learning disabilities and geared to their needs. They also have a role in educating carers and professionals, who can then promote the health of this population. It is important to promote mental as well as physical health, but this is often neglected.

Screening services should understand the importance of including people with learning disabilities and helping them to cooperate with screening. Guidance on accessing breast and cervical screening services has been produced by the National Cancer Screening Programmes (National Health Service, 2001a,b).

Primary health care services not only provide care and treatment but also act as a gateway to specialist services. They therefore play a key role and need to be well-informed about the needs of people with learning disabilities (Lindsey & Russell, 1999). A Government White Paper for England (Department of Health, 2001a) states that by June 2004 all people with learning disabilities should be registered with a general practitioner (GP) and that all general practices will have identified all people with a learning disability registered with the practice. Staff from community learning disability teams will take on the role of health facilitators to support people with learning disabilities in gaining access to the help that they need from primary care and other NHS services. The role of health facilitators should embrace mental as well as physical needs. Each individual with a learning disability will also be offered a Health Action Plan, and responsibility for completion and subsequent updating of this will rest with the health facilitator in partnership with primary care nurses and GPs. The effectiveness of this novel approach to improving the health of people with learning disabilities has yet to be evaluated.

Access to general hospital services continues to cause concern for many families because these services often lack the sensitivity and flexibility required to respond to special needs. People with learning disabilities and their carers often complain that the attitudes of staff are discriminatory. Nevertheless, they also report a steady improvement over the years, with greater equity of access and treatment. The same standards of care available to the general population, for example those described in the recent National Service Frameworks for England (Department of Health, 1999, 2001b) apply equally to people with learning disabilities.





3.3 - Explain how to promote access to health care through the use of reasonable adjustments.


Since the Disability Discrimination Act, people with learning disabilities (along with other groups of disabled people) have had a legal entitlement to have equal access to public services, including those provided by the NHS. Over time, principally through the Disability Discrimination Act and reinforced in the recent Equality Act, this fundamental entitlement has been increasingly well-defined as the Disability Equality Duty.

In law, all public sector services have a legal duty to make ‘reasonable adjustments’ to the way they make their services available to people with learning disabilities, to make them as accessible and effective as they would be for people without disabilities.

Reasonable adjustments include removing physical barriers to accessing health services, but importantly also include making whatever alterations are necessary to policies, procedures, staff training and service delivery to ensure that they work equally well for people with learning disabilities.

This legal duty for health services is ‘anticipatory’. This means that health service organisations are required to consider in advance what adjustments people with learning disabilities will require, rather than waiting until people with learning disabilities attempt to use health services to put reasonable adjustments into place.

Over the past 20 years, the substantial and wide-ranging health inequalities experienced by people with learning disabilities have become increasingly well-documented. A major contributory factor has been stark inequalities in the accessibility of health services for people with learning disabilities, and the treatments they receive (or are denied). These inequalities in access and treatment to healthservices have been thoroughly documented in a series of investigations and inquiries.

In 2006, the Disability Rights Commission reported on the findings of its formal investigation into the physical health inequalities experienced by people with learning disabilities and/or mental health problems, focusing particularly on primary care health services. Although there were isolated examples of effective reasonable adjustments, the general picture was that primary care services, whilst they had removed physical access barriers (for example through installation of wheelchair ramps), had not altered the policies, procedures and requirements that made them in accessible and unresponsive for people with learning disabilities. There was also evidence of substantial unmethealth needs amongst people with learning disabilities that were not being addressed through primary care health screening and subsequent treatment.

In 2007, a national audit of specialist inpatient healthcare services for people with learning disabilities carried out by the Healthcare Commission, reported concerns about aspects of the quality of most services, with common problems in safeguarding procedures, access to advocates, care planning, staff training, institutional regimes and rigorous scrutiny of service quality. Also in 2007, Mencap highlighted the cases of six people with learning disabilities who their families believed had died avoidably while in NHS or social services care (see also the ‘Six Lives’ report of the investigation into these six cases by the Parliamentary and Health Service Ombudsman and Local Government Ombudsman in 2009).





3.4 - Analyse the rights of others significant to the individual to be involved in planning health care services.


Good quality service and support should reflect an individual’s needs and goals and take full account of the individual’s expressed preferences. A failure to take full account of these matters tends to result in the provision of relatively generalised service and support, which may not be capable of adapting sufficiently to effectively address an individual’s needs or goals. By focussing on the individual, individual planning should encourage service flexibility and innovation; inform an authority’s strategic service planning and commissioning processes and achieve better outcomes for individuals.

Health policy can be defined as the "decisions, plans, and actions that are undertaken to achieve specific health care goals within a society." According to the World Health Organization, an explicit health policy can achieve several things: it defines a vision for the future; it outlines priorities and the expected roles of different groups; and it builds consensus and informs people.

Health-related policy and its implementation is complex. Conceptual models can help show the flow from health-related policy development to health-related policy and program implementation and to health systems and health outcomes. Policy should be understood as more than a national law or health policy that supports a program or intervention. Operational policies are the rules, regulations, guidelines, and administrative norms that governments use to translate national laws and policies into programs and services. The policy process encompasses decisions made at a national or decentralized level (including funding decisions) that affect whether and how services are delivered. Thus, attention must be paid to policies at multiple levels of the health system and over time to ensure sustainable scale-up. A supportive policy environment will facilitate the scale-up of health interventions.

The modern concept of health care involves access to medical professionals from various fields as well as medical technology, such as medications and surgical equipment. It also involves access to the latest information and evidence from research, including medical research and health services research.

4. Understand how to support others to develop, implement, monitor and review plans for health care.


4.1 - Explain how to champion a person-centered focus to the health care planning process.  


Person-centred planning is at the heart of much recent policy relating to the provision of social care services. It refers to a family of approaches aimed at enabling people who use services to plan their own futures and to get the services that they need. While the terminology varies between different user groups, the fundamental values of the concept are the same – embracing the principles of independence, choice, inclusion, equality and empowerment as the foundations of service provision. A substantial change is needed in thinking, so that thinking that has long guided approaches to support person-centred planning becomes standard within social care services.

Traditionally, disabled people have been expected to fit into existing services. They have had little input into the design or delivery of the service they receive. There is evidence of a change within services in the direction of person-centred planning; however, this remains partial. While person-centred planning has been widely endorsed, it has not as yet been fully adopted or implemented across social care services. Even though the policy focus is on person-centred planning and it is broadly accepted as the way forward for service provision, it has proved easier to talk about it than to do it.

Current services have inherited resource systems that are based on outdated models of service provision. They were often managed and allocated on a whole-service basis without reference to the individual. Likewise, funding arrangements need to be restructured in order to give individuals more choice and control in designing their own support. An increase in the use of Direct Payments is conducive to increased choice for individuals. Adequate staffing to support work with individuals is needed, together with the allocation of sufficient time for staff to work with service users on devising and delivering person-centred plans. The potential for person-centred planning is improved through the development of strategies to support multi-agency working and through mainstream services being accessible to social care service users. A requirement of these changes is a fundamental change in the culture that permeates services so that the idea of person-centred planning is fully accepted.

Because of the legacy of traditional approaches to service design, service users often feel that they have little impact on the way that services are planned and delivered. However, there are clear calls for more control on the part of service users and their families. The degree of a person’s disability, illness or the complexity of their needs should not be regarded as a barrier to person-centred planning, which, with time and thought, should be available to each person who uses social care services. The inclusion of family members and informal support networks is a key component of person-centred planning. The onus is on services to devise the best way to bring families in and to encourage the growth of informal networks of support. Families and professionals may not always agree about what constitutes the best approach to service delivery, but it is imperative that service providers work to foster good relationships with families. In relation to service users and their families, cultural changes in the form of a realignment of power relations between service users and service providers are needed to facilitate person-centred planning.

Staff are a key resource in the delivery of good-quality social care services. While many skill deficits are identified among frontline staff, there is also an acknowledgment in the literature that the full range of skills that practitioners possess are not always recognised or used. Some staff are described as naturals, in that they instinctively deliver services with a person-centred approach, without having had any training or direction in doing so. Moreover, staff often have gathered skills outside their working environment that could be used within their workplace. While it is important that existing skills are recognised and valued, there remains a need for training for frontline staff and for managers in the delivery of person-centred planning. Training should be designed with the particular needs of support workers in mind and should take a person-centred approach.

Support for staff is crucial. This needs to be in the form of appropriate and person-centred management, and through the development of informal support structures, such as mentoring or the development of support groups made up of members of interagency staff teams. For managerial support to be effective in the implementation of person-centred planning by staff teams, managerial styles need to be person-centred and inclusive. This would develop a whole-service, person-centred culture, increasing the likelihood that it would be a sustainable approach to delivering support.

Several factors need to be in place to make person-centred planning work. These include: adherence to the underlying principles of person-centred planning; sufficient resources and appropriate funding; a trained, confident and well-equipped staff team who are managed in an inclusive and empowering style that institutes clear planning and direction for the future.

Achieving person-centred planning is not a rapid process and it is important that sufficient time is taken for initiatives to be put in place, and for policy makers, practitioners and service users to retain their enthusiasm for establishing this policy, before moving on to the next initiative.

4.2 - Explain factors to consider when supporting others to develop and implement plans for health care.


Care plan implementation involves an array of care management activities through which the care plan is put into effect. These activities may include providing information about available services, as we ll as educating clients and family members about how to access services or perform specific care activities themselves. It may also entail “service coordination,” which can define as the active involvement of a person or persons, such as clients, family members, or case managers, in arranging for or maintaining specific services.

Geron & Chassler (1994) state that care plan implementation should be timely and cost-effective, with the goal of maximizing “client independence and choice while using the least intensive, least intrusive, most cost effective, and highest quality interventions.” Information and education are also seen as important components of the process, since many consumers are not knowledgeable about the long-term care system and require specific instruction about how to maximize their access to and utilization of needed health and social services. There is also recognition that implementation involves a variety of considerations, such as the services and goals identified in the care plan, funding limits and authority to purchase services, availability of local providers, and size of caseload.

It is widely recognised that not all clients need or want help with implementing their care plans. For example, they may not need information about services when the care plan is simply a replication of services already in place, or they may wish to coordinate services themselves or have family members who are capable and willing to do this. On the other hand, some clients do not have the capacity or desire to implement their own care plans due to factors such as lack of family support or cognitive or physical impairment. Under these circumstances, assistance with implementation of care plans for these clients, including service coordination, may be desired by them or required to ensure safety.


4.3 - Explain how to support others to monitor and review plans for health care.


  Evaluating care plan takes place directly with the user and carer. The objective is to assess whether the service user and carer are content with the care contributions being provided to meet the user's care needs and whether any issues of concern should be considered. During this process practitioners will be mindful to ensure that service users and carers experience good quality services from their perspective and will give consideration to whether other policies and procedures, for example Health and Safety legislation or procedures to protect vulnerable adults might apply to the situation there are evaluating.

In some circumstances for example where service users are particularly vulnerable or where they might lack capacity it will be necessary to commence or continue the involvement of an advocacy service in speaking up for the service user and carer. Where the practitioner judges that this may be necessary they should consult with their line manager with regard to taking this action forward.

4.4 - Explain how to challenge health care providers and services when required to advocate with or on behalf of individuals.


Advocacy in this field began when the families of people with mental disorders first made their voices heard. People with mental disorders then added their own contributions. Gradually, these people and their families were joined and supported by a range of organizations, many mental health workers and their associations, and some governments. Recently, the concept of advocacy has been broadened to include the needs and rights of persons with mild mental disorders and the mental health needs and rights of the general population.

Among the groups involved in advocacy are consumer and “survivor” organizations and a range of nongovernmental organizations. In several countries, advocacy initiatives in favour of mental health and persons with mental disorders are supported and, in some cases, carried out by governments, ministries of health, states and provinces.

In many developing countries, mental health advocacy groups have not yet been formed or are in their infancy. There is potential for rapid development, particularly because costs are relatively low, and because social support and solidarity are often highly valued in these countries. Development depends, to some extent, on technical assistance and financial support from both public and private sources.

The emergence of mental health advocacy movements in several countries has helped to change society’s perceptions of persons with mental disorders. Consumers have begun to articulate their own visions of the services they need. They are increasingly able to make informed decisions about treatment and other matters in their daily lives. Consumer and family participation in advocacy organizations may also have several positive outcomes.

The roles of families in advocacy overlap with many of the areas taken on by consumers. However, families have the distinctive role of caring for persons with mental disorders. In many places they are the primary care providers and their organizations are fundamental as support networks. In addition to providing mutual support and services, many family groups have become advocates, educating the community, increasing the support obtained from policy-makers, denouncing stigma and discrimination, and fighting for improved services.


4.5 - Explain how to support others to raise concerns and challenge health care services.


Usually, the best way to raise a concern is to do so openly. Openness makes it easier for the organisation to assess the issue, work out how to investigate the matter, understand the issues and get more information. A worker raises a concern confidentially if he or she gives his or her name on the condition that it is not revealed without his or her consent. A worker raises a concern anonymously if he or she does not give his or her name at all. If this happens, the best an organisation can do is to assess the anonymous information as best they can to establish whether there is substance to the concern and whether it can be addressed. Clearly if no-one knows who provided the information it is not possible to reassure or protect them.

The Public Interest Disclosure Act 1998, known as PIDA or the whistleblowing act, is intended to promote internal and regulatory disclosures and encourage workplace accountability and self-regulation. The Act protects the public interest by providing a remedy for individuals who suffer workplace reprisal for raising a genuine concern, whether it is a concern about patient safety, safeguarding, financial malpractice, danger, illegality, or other wrongdoing.

Whistleblowing is the term used when someone who works in or for an organisation wishes to raise concerns about malpractice, wrongdoing, illegality or risk in the organization (for example raising a concern about patient safety) and/or covering up any of these. The malpractice has a public interest aspect to it, usually because it threatens others. Whistleblowing applies to raising a concern within the organisation as well as externally, such as to a regulator like HIW. Concerns about the actions of healthcare organisations or their staff and the effects these have on the people they care for inevitably arise from time to time. Doing something about them is always far better than doing nothing and we
recognise that this isn’t always easy.

5. Be able to develop processes to support others to meet the health care needs of individuals with a learning disability.


5.4 - Evaluate the impact of systems in meeting individual’s healthcare needs.


It was common for a health check to be carried out by a General Practitioner (GP) to measure individuals health care needs. One study placed a prompt card in GP medical records to encourage opportunistic health screening of people with learning disabilities. Other studies describe health checks being carried out by a practice nurse, or both a practice nurse and GP. Other studies report health checks being carried out by a community learning disability nurse, or a community nurse, sometimes in conjunction with a GP, teams of healthcare professionals, through joint clinics, or by the study authors themselves. One study was identified where the patient themselves carried out the health check, with the assistance of a health facilitator.

Studies varied with respect to how the outcomes of health checks were measured. The most common outcome measure employed was the extent to which health checks identified previously undetected health needs. Other studies did not specifically differentiate between health needs which were newly identified by health checks and those which may have already been identified. Further studies look not at health needs per se but the actions arising from health checks, such as referrals made, health promotion activities undertaken, access to primary care services and health gain.

The evidence is clear in indicating that health checks are effective in identifying previously undetected health conditions in people with learning disabilities. Only one study found that the intervention made no significant difference to this outcome. However, in this case the intervention was the insertion of a prompt card into medical notes which was designed to promote opportunistic health screening by GPs rather than health screening per se.63 The authors concluded that: “These results lend weight to the argument that, in the absence of statutory regulations and considering their current pressures of work, GPs are unlikely to provide the necessary screening on a purely opportunistic basis”.

Ø  UK Studies:
“Of 65 patients 57 (88%) had specific health needs identified through a health screening process. Seventeen had one unmanaged health need, and five more than one. Unmanaged needs were: hypertension (2); congenital heart disease (2); arrhythmias (6); abdominal pain (1); testicular abnormality (3); hypospadias (1); secondary incontinence (1); intermenstrual bleeding (1); seizure disorder (9); weight loss (1); and blepharitis (1). Of the three people identified as having testicular abnormalities, one had seminoma and needed surgery and radiotherapy. Of the six people identified as having arrhythmias, most had bradycardias in the context of Down syndrome, probably a symptom of previously undetected hypothyroidism (of 19 people with Down’s syndrome and only 4 had had their thyroid function checked in the last 5 years). Thirty three people had wax totally obscuring one or both eardrums; 15 of these failed the hearing test. Carers were poor at predicting hearing and vision impairment. For example, carers correctly predicted failure of vision and hearing tests in less than 50% of instances.”






References


Ø  NHS Health Scotland. People with Learning Disabilities in Scotland: Health Needs Assessment Report. Glasgow: NHS Health Scotland, 2004.

Ø  Nocon A. Equal Treatment - Closing the Gap: Background evidence for the DRC’s formal investigation into health inequalities experienced by people with learning disabilities or mental health problems. Manchester: Disability Rights Commission, 2006.

Ø  Department of Health (2009) Equal access? A practical guide for the NHS: creating a single equality scheme that includes improving access for people with learning disabilities, London: DH.

Ø  NHS Quality Improvement Scotland (2006) Promoting access to healthcare for people with a learning disability – a guide for frontline staff, Edinburgh: NHS Quality Improvement Scotland.

Ø  Royal College of Nursing (2007) Mental health nursing of adults with learning disabilities, London: RCN.

Ø  Royal College of Nursing (2009) Dignity in health care for people with learning disabilities, London: RCN.

Ø  Scottish Executive (2000) The same as you: a review of services for people with learning disability, Edinburgh: Scottish Executive.


Ø  Diploma in Leadership for Health and Social Care Level 5 – By Nelson Thornes.